ICE ICP measurement trips

In 2009, I was involved in a research project in Ulm in which a worldwide new imaging technology was developed, more on this under Dynamic imaging of arachnoid adhesions of the spinal canal, my case was described in chapter 3.2.

This should finally lead to the successful treatment of my spinal intradural arachnoid cyst, which had been overlooked dozens of times and in some cases deliberately, using an improved microsurgical procedure.

This arachnopathy is said to have a congenital background, which became even more significantly symptomatic due to the multiple CNS infections of the brain and spinal cord when I was already used to waking up with back pain every day, without exception, from childhood onwards.

However, it was only due to the constant change in altitude that the symptoms became so pronounced that I was dependent on medication and had symptoms of disability.

As a result, I was involved in a research project there again in 2016, which exposed a charlatan technology along the way – an interesting story in its own right.

In any case, after the VP shunt implantation at another location and the initial successes, I kept having problems with it.
Especially as, after a disaster, the ventricular catheter was now inoperable, latently endangering my life at any time, and came to rest in central regions of the brain, since then my neurocognitive deficits have steadily increased and I can only concentrate for a few minutes.
Nevertheless, experts judge it in a few minutes, in dark booths, as if none of this existed, although they have no qualifications whatsoever, as only certified neuropsychologists can have.
https://www.gnp.de/behandlerliste

In any case, this other research project in Ulm involved a telemetric ICP measurement, which is the wrong way to say intracranial pressure measurement.
To do this, an ICP probe first had to be implanted in the left frontal brain via trephination; the tip of the probe itself then protruded into the frontal cortex.
Afterwards, the neurosurgeons told me that they could barely get through my hardened and scarred meninges, which had always caused me problems that no one wanted to see, but that this became acutely interesting in a different way.

Okay, in Ulm a great deal of effort was made to find the right pressure level for me, but this never really succeeded, especially as it fluctuated greatly depending on where I was, as I had already known this for over twenty years, even without a VP shunt, since the meningomyeloencephalitis in 2001, which was deliberately unrecognised at the time and traces of which were only gradually found later.

And so I had an idea that was approved by the person in charge of this research project, which I had to sign, partly because I had to borrow expensive equipment.

My idea was to make several ICP reference measurement runs with the ICE, i.e. between Ulm and Dortmund or between Munich and Dortmund and back.
This had never been done before anywhere in the world and has never been repeated by anyone else.

The findings from this were astonishing and at the same time helpful in understanding the various types of brain damage that affected me and the severe consequences of this.

Because it was not believed at first, the calibrated measuring devices were replaced and the results did not change, a defect in the ICP probe was considered and this was replaced.

Once again, this only produced the familiar, unbelievable results, which were logical for me because they were a very good representation of my fluctuating condition.

Scientifically, it is known that the capillaries of the arachnoid are mainly responsible for regulating the hydrodynamics of the CSF, but of course more is involved, and the system is still not fully explained.

Researching neurosurgeons, these doctors who have been clinically active for decades, told me that they thought they now knew the answer and yet had to discard it, which is still the case today.

And it is precisely with regard to the function of the CNS interfaces and barriers that there have been completely new approaches to thinking and research for about five years, where it has already been reported that doctors have to learn anew, that they can discard the old knowledge, and where the interface between illness and health is also reported in key words.

Reports on this can be found at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8281977/ and https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5833009/.

So, and now a few photos of what it looked like when I was doing my research work on the ICE, the train attendants were curious and found it very interesting.
Then I will tell you what should not be the case with a healthy person, but is the case with me, not only subjectively, but also clearly and objectively proven, even if the so-called state of scientific knowledge according to the German Social Code could not define such a thing, because there are not enough trained experts to be able to judge it.

And, if I mention this one hundred times, it is blatant and scandalous to whom and with what pitiful level of knowledge those patients are helplessly at the mercy of.
I, too, have to work very hard for this, with multiple brain damage and significant cognitive deficits as a result.

And so this text could only be written over several days.

We are now only interested in analysing the series of measurements.

Here is just one example of a series of measurements, as the others never looked any different.
A healthy person is easily able to equalise the differential pressure between the pressure inside the skull (intracranial pressure, not incorrectly referred to as intracranial pressure) and the external atmospheric pressure up to an altitude of around 2,000 metres, excluding very rapid pressure changes, which everyone will experience subjectively for a few seconds to minutes.

However, as you can see in the diagram above, I can no longer equalise the pressure, probably because of the damaged meninges.
And that explains why I always feel bad in different places, because I’ve been feeling bad all my life anyway.
When I started working in Munich, I was struggling with severe symptoms that I had hidden in the hope that they would go away, but they never really did.

By moving every week, I had simply swapped the specific health problems in Munich for the specific health problems in Dortmund.
For this reason alone, it will no longer be possible to stay with my current employer in Munich.

In addition, my boss has already experienced other things with me that I have not yet reported, but which will mean that I will no longer be able to work there and he recommended that I consider retiring.
A responsible company has a so-called duty of care, and my employer takes this very seriously.

Especially since the incidents concerning the work-related stay in Romania.
Well, I would have to report separately on how the VP shunt was torn off extra- and intracranially, the ventricular catheter broke through the floor of the right lateral ventricle into central brain regions, came to rest there inoperably and now puts me at permanent vital risk, new serious symptoms were added, which are always provoked by orthostatic changes in position, by slight positive or negative acceleration, etc. I am now in a position where I can no longer be operated on.